Hello Everyone,
I don't have much time or energy for a long update but I know a lot of you are waiting for news. I will begin by letting you know that clinically Julia is feeling better this week.
As some of you know Julia went into the OR last Tuesday for a lymph node biopsy (they took 3 lymph nodes in her neck out), a stomach and bowel biopsy, and a spinal tap. Unfortunately we don't have final results, but we did get preliminary results today from the lymph node they removed in her neck, and it looks like it is showing PTLD. This is however preliminary and further staining needs to be done. The gut biopsy is not reported yet. Doctors will have final results in a couple of days and come up with a plan. It looks like we will be moving to high dose chemotherapy. I don't know what chemo, how long treatment will be, or if we will need to stay in patient. It has already been 1 month we are in the hospital and the plan is to start some sort of treatment on Thursday so I suspect we will be here for awhile.
Elio and I are still trying to take in the news we got today and anxiously awaiting final pathology reports to get a clearer picture of what's going on. For now it looks like we are looking at a relapse. I will update the blog by the end of the week with final results and plan. In the meantime please pray for Julia.
Sincerely,
Nadia
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